Absolutely terrible and unforgivable!!!!

Mama San

Administrator
DURHAM, N.C. (Feb. 21) - Jesica Santillan, the 17-year-old girl who underwent a second heart-lung transplant after the first was botched, was found to have severe and perhaps irreversible brain damage Friday.

The girl's chief benefactor said doctors told Jesica's family the girl may be brain dead and tests would be performed Saturday. But a hospital spokesman said Jesica hadn't been declared brain dead and no tests were planned.

Mack Mahoney blamed the grim turn on Duke University Medical Center, saying image-conscious doctors hesitated to take the blame for the first, bungled operation and lost precious time in the hunt for a new set of organs.

''If she dies, they murdered her,'' said Mahoney, a North Carolina building contractor who started a charity in Jesica's name.

In her first transplant Feb. 7, the Mexican teenager was mistakenly given a heart and lungs from a donor with the wrong blood type. Her body rejected the organs, and she was on life support by the time a matching donor was found and a second transplant performed Thursday morning.

Though the new organs were performing well, tests early Friday showed Jesica's brain had swelled and was bleeding, said Dr. Karen Frush, the hospital's medical director of children's services. She said Jesica was also hooked up to dialysis machines because of damage to her kidneys.

''Yesterday after the transplant, we were all very hopeful,'' Frush said. But now, ''the swelling in her brain is severe, severe to the point we fear it's irreversible.''

According to Mahoney, doctors told Jesica's family they would test her brain-wave function Saturday. Duke spokesman Richard Puff denied that.

''Jesica has not been diagnosed as brain dead,'' he said, noting that ''the time frame to declare brain death may take up to 24 hours.''

Earlier, Mahoney had said doctors told the family to prepare for a possible decision to remove the girl from life support. But her mother, Magdalena Santillan, refused to think about it, he said.

''She won't even discuss last rites because it's like giving up,'' Mahoney said.

Frush said there was no sure way to tell when the brain damage occurred. But Mahoney said doctors told the family it was due to the time Jesica was connected to life support.

''Life support ruins kidneys, it ruins brains, it ruins all the organs of the body,'' he said. ''What they done is played with that little girl's life, trying to make a decision on whether they was going to fess up. They were putting their bottom line before a little girl's life.''

''I'm mad. I'm enraged. I'm horrified,'' Mahoney said. ''It's a horrifying thing. You take your child to what you considered to be the best institution in the world for a particular kind of surgery and you get this.''

Hospital chief executive Dr. William Fulkerson denied that the hospital had delayed the search for new organs, and pointed out that the second set was found in a matter of days. The second transplant came 13 days after the first.

''I think we have been honest and forthcoming with Jesica's family about her medical care every step of the way and we have accepted the responsibility publicly,'' Fulkerson said.

Earlier Friday, as Jesica was wheeled out of her room in intensive care to have a brain scan, she had a blue ventilator hose and other tubes attached to her body, and her head was covered with surgical tissues. Her eyes were swollen so much they appeared to be open.

Her mother stood nearby, sobbing.

Jesica had a heart deformity that kept her lungs from getting oxygen into her blood. Relatives have said her family paid a smuggler to bring them from their small town near Guadalajara to the United States so she could get medical care. She waited three years for organs to become available.

In the first operation, Dr. James Jaggers implanted organs from a donor with type A blood, rather than Jesica's O-positive, a mistake Duke officials said was not discovered until the surgery was almost over.

Fulkerson said Jaggers wrongly assumed compatibility had been confirmed when he was offered the organs, and later failed to double-check that assumption, a violation of the hospital's procedures.

Duke officials explained the error in detail in a letter sent Friday to the United Network for Organ Sharing, which matches patients with donated organs.

The letter was signed by Fulkerson and Dr. Duane Davis, surgical director of Duke's lung transplant program. They said Jaggers declined the organs for one patient who was not ready for transplant and asked Carolina Donor Services, an organ procurement organization, whether they were available for Jesica.

CDS officials checked the data and called back, offering the organs to Davis, who declined because they were the wrong size for his patient. The organs were then offered to Jaggers for Jesica, the letter said.

AP-NY-02-21-03 1956EST
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
There is NO excuse for this!!!!!!!!!!
We pray for her complete recovery!
God bless,
Mama san
 

Lotussan

I Belong To Steven
Casey,
I too am praying, but they are now saying that she has irreversible brain damage, and they have told her parents
to prepare for the possible removal of life support...This is sooo sad, and tragic...:( Couldn't they have had double checks to
make sure everything is compatible before they proceed?
Organ transplants as far as I know, seem to carry a lot of difficulty in general (regarding rejection, and so forth) I'm just shaking my head and wondering about it all...Blessings to her and her family...
 

Mama San

Administrator
Lotussan,
You are absolutely right! But the "doctor" didn't take the
time to double check the blood type! How long does it take to
check blood type? A few minutes? Just a few minutes could have
saved this precious child! I know it will not change the outcome of this tragedy, nor will it ease the pain of the parents but I hope they sue the pants off the doctor(s) and the hospital! Whatever they would get, would not be near enough!
And they want to limit the amount that a person(s) can sue doctors and hospitals for! If their "jobs" were done right, in the
first place, they wouldn't have to be that concerned about law suits!
We continue to pray for Jesica!
God bless,
Mama san
 

suziwong

Administrator
Staff member
Unbelieveble !! You are right Casey !!
"No excuse for this !!! "
I am praying too !!

God Bless
suzi
 

Amos Stevens

New Member
Yep,I have been following this story & again another example of the complete negligence in the medical field that will cost this young girl-who only wanted to be able to walk again,her life.
She was on the transplant list for how many years..in that time period they knew what her blood type is!A lawsuit won't replace what has happened.
 

Baseball Lady

New Member
Casey,

I've been following this story in utter disbelief. The unit I work on has pediatric oncology patients that are getting ready for transplant (stem cell). Any labs we draw on them are triple checked as we draw them. When I worked with the organ bank here in Texas on retrievals (I cared for the donors). They were on the phones and the fax machines for hours comparing matches. Organ matches are made based on a critieria of six HLA matches. Most transplants have three to four of six and are considered a good match. A five or six point match is an excellent match (normally a relative). I don't know how this transplant even got past the first stage. Every patient who needs a transplant is placed on a list with an organ bank. One of the first things listed is blood type. It is the first of many checks that must be made. I don't know how the organs even got sent to Duke, let alone used. There were more screwups than just Duke. Both the organ donor site and retrieval services will also have to bear some of the responsibility. It is so hard to get organs for kids that desperately need them to live. Too many people were careless on this case and now a child has to pay for their mistake.

The biggest fear I have as I work each day is am I doing what my patients need and is my care good enough. I think it goes back to the motto of "first do no harm". I don't know how anyone could be in my job and be that careless, but I know it happens.

The other bad thing that will happen from this, is that less people will donate their organs, less people will receive transplants and more people will die. What a shame. My prayers are with this child and her family.

BB Lady
 

Lotussan

I Belong To Steven
The latest news is that the Jesica is brain dead, her mother is not taking her off life support though. They are still hoping...So am I...Hope is a great thing...
 

Nightwolf

New Member
Hi
I'm new here, but read this thread, and, it is a very sad and tragic thing that has happened. My prayers for Jesica and her family. My heart goes out to them, and I was also shocked to hear such a thing happened.
~M
 

Connie

Member
I saw on the tv that the girl died....

I feel sorry for her perents. I hope they find the power to go on some time



Connie
 

Mama San

Administrator
You're right, Connie!
Here's the report:

DURHAM, N.C. (Feb. 22) - Jesica Santillan, the teenager who survived a botched heart-lung transplant long enough to get an odds-shattering second set of donated organs, died Saturday, two days after the second transplant.

Doctors declared her brain dead at 1:25 p.m., said Duke University Medical Center spokesman Richard Puff.

She was kept on life support through the afternoon so family and friends could say goodbye, the hospital said in a statement. Medication to keep her heart going was discontinued at 5 p.m.; her heart stopped seven minutes later and a ventilator was then turned off.

Renee McCormick, a spokeswoman for a charity created to pay Jesica's medical bills, said the Santillan family didn't know until then that doctors were taking her off life support.

``They were hysterical,'' McCormick said. ``The family's been treated so poorly. They're very hurt. These are human beings.''

A family lawyer said earlier they didn't want to remove Jesica from life support until an outside doctor verified she was brain dead. He could not be reached later Saturday.

Jesica, 17, whose own heart had a deformity that kept her lungs from getting oxygen into her blood, received a heart-lung transplant Feb. 7. But because of human error, the organs were of a different blood type, and her body rejected them.

She was near death by the time the second set was placed in her body early Thursday. By early Friday, the newest organs were performing well but Jesica's brain was swelled and bleeding.

In the first operation, Dr. James Jaggers implanted organs from a donor with type A blood, rather than Jesica's O-positive. In a letter to the United Network for Organ Sharing, which matches patients with donated organs, Duke officials said Jaggers and Carolina Donor Services, a procurement agency, failed to share information about her blood type.

Jaggers, in his first public remarks, said Saturday he had hoped Jesica would be ``one of those lucky few'' awaiting heart-lung transplants who actually receive the surgery and do well.

``Unfortunately, in this case, human errors were made during the process'' to match the organs with the patient, he said in a taped statement released by Duke.

``I hope that we, and others, can learn from this tragic mistake and move forward to make the process safer and available to more of those in need. To do otherwise would fail to properly honor Jesica and her memory.''

Family lawyer Kurt Dixon said Jesica's parents and supporters, who had remained with her through her hospitalization, would not be available for comment.

``All of us at Duke University Hospital are deeply saddened by this,'' Dr. William Fulkerson, the hospital's chief executive officer, said Saturday. ``We want Jesica's family and supporters to know that we share their loss and their grief. We very much regret these tragic circumstances.''

Relatives have said her family paid a smuggler to bring them from their small town near Guadalajara, Mexico, to the United States so she could get medical care.

Less than two weeks after the botched operation, a second set of organs was located - amazingly fast in comparison to the three years Jesica spent on a waiting list before her first operation. Eighty percent of patients awaiting transplants die before organs can be found.

Dr. Karen Frush, the hospital's medical director of children's services, has there was no sure way to tell when the brain damage occurred. But Mack Mahoney, a family friend and Jesica's chief benefactor, said doctors told the family it was due to the time Jesica was connected to life support.

``Life support ruins kidneys, it ruins brains, it ruins all the organs of the body,'' he said.

The Santillan family declined to donate any organs from Jesica's body, Puff said.

Jesica's place on the transplant list was determined by several factors, including the severity of her illness and her age.

Her immigration status played no role because hospitals may place non-U.S. citizens on their waiting lists and must give them the same priority as citizens, said Anne Paschke, spokeswoman for the organ network. But they cannot perform more than 5 percent of their transplants on non-citizens.

Heart and lung transplants are rare for teenagers: In the first 11 months of 2002, there were four nationwide for children between the ages of 11 and 17, UNOS' records show. The previous year, there were four.

02/22/03 21:48 EST

May she rest in peace!
God bless,
Mama san
 

Lotussan

I Belong To Steven
She touched a lot of hearts in her last moments...What a very tragic thing this was....I hope her family can find inner peace...
 
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